General Discussions

Have you travelled with Epilepsy

Hi Mums,

I am a writer trying to put together a story on travelling with kids with a range of medical conditions and special needs including, Asthma, Autism, Diabetes, Anaphylaxsis and Epliepsy. The article will be aimed at helping other parents get a vacation!! 

 

I am wondering if anyone has travelled at all with their children and would be willing to share their story? You dont have to have gone far, I am just interested in what planning you had to do and things like that...

 

Hashimoto’s Encepha­lo­pathy = seizures in kids

StopTheThyroidMadness.com

 

I was puttering around on the website above because I deal with thyroid problems and have hashimoto's thyroiditis (autoimmune). My daughter with epilepsy has it as well as another daughter. I was really shocked when I started looking around online about this hashimoto's encephalopathy because my daughter has the symptoms: 

dr says he won't outgrow it

Logan has myoclonic-astatic epilepsy.  He's had it for over 2 years.  The doctor said he won't outgrow it at this point.  I'm scared, the meds aren't working, is it too late to start a special diet?  Should I go right into the ketogenic diet or start with one of the less restrictive diets?

He said he's probably not a candidate for surgery or vns, if he is, what is the best option, diet, surgery, vns?

He's been on trileptal, topomax, depakote, keppra, lamictal, ethosuximide. 

aaaaaaaaaaaaaagh!

Jaden is 6 now

HOW DO I PAY HER BACK FOR RESTORING MY HEALTH.

My name is Catherine Anderson.i live in Canada.i lived with epilepsy for 6 years now and i used to take drugs that are so expensive.The prices are not my problem,i just want to be totally from this illness.i decided i will seek help spiritually.on this course i met different spell caster which later turned to be spammers.good i met a spell caster and she told me she will help me.she made for me herbs and said she will do other helps as well.i never believed her and my mind gave me the sign of the last time issue,so i decided to try that for the last time.i did all she asked me to few day

Survey

Hi all- I just wanted to let you know about an anonymous survey that is asking for your feedback on designs for

C02 retaining

My son has a condition called Dravets syndrome, severe myoclonic epilepsy in infancy. I have now been told he is retaining co2, has anybody had this problem, if so could you PLEASE take the time to explain to me what this will involve. Cry

 

Is my daughter actually having seizures?

Hi, my name is Nathalie

Samantha is my daughter, she's the third of four children. She has an older brother and sister, and a younger sister. She is the most loving child anyone could wish for. When someone is sick, you can always count on Samantha to make sure they have everything they need, including their teddy's. She is sweet and kind and bursting with love.

But now our family is turning the table. It's our turn to take care of her, and watch her to keep her safe.

Nighttime Seizures

Can anybody recommend a night-time seizure that detects vomit?  Our daughter has nocturnal seizures and always vomits.  A movement monitor will not work b/c she doesn't convulse. She is very still and just her eyes and left hand twitching, the rest of her body is stiff  except for the vomiting.  Obviously, we want a monitor to alert us and we thought some kind of moisture sensor might be out there.  Any suggestions?

Thank you

New to Seizures

Christians Mommy's picture

Just some history - my son had a near drowning 7 months ago. This resulted in an anoxic brain injury. Shortly after he was put on a low dosage of Keppra for seizure prevention.

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