Medical Marijuana and Canna Caps, Has Anyone Else Tried This?

I'd never heard of this, but, after you posted, I Googled around a bit and found that there's good evidence that cannabis helps control seizures. Who knew??

I looked at the medical literature a little bit, too, and apparently med MJ is best for partial seizures.

Good for you! I'm so happy that she's doing well -- wrong kind of seizures for my dtr. to use it, but yeah for you!

Annie

Hi Cheryl,

Thank you so much for your post.

I had never heard of this either. If you would like some assistance posting the EEG sending it to me at arlene @ epilepsymoms.com I will be happy to post it.

And, a big welcome to the chat forum.

Arlene Martell (Mom of Adam above)
Publisher, EpilepsyMoms.com

I had heard the marijuana would help with glaucoma, but not about it helping with seizures. Are they using this alone or in combination with other medications? How about diet? Sheri

right now hayley is on the modified atkins diet and topamax and lamictal but they havent been doing a good enough job alone.the marijuna has helped so much we are starting to reduce the topamax.next im hoping for the lamictal last the diet but i want to stay on the diet so it can work its magic and let her brain heal. i have scientific articles on how it helps in the brain.it actually acts like a suppliment in our brains.we produce enndocanibinoids aready and it works with them.i do know of other epileptics that are only on medical marijuana and came off all the other drugs.i am also looking into high nutrient foods that will help on the diet when i find out more about them i will post about them.just organic garden plants.under the health canda medical marijuana exemptee forms epilepsy is a catagory 1 condition which means it is a simple single check mark dont by your doc and then how much u need and that is pretty much it.unfortunately there is not alot of scientifically proven stuff out there is more coming out all the time though.our governments just need to put the funding out.

How does your daughter take the marijuana? I know you wrote vaporizer, is that like an asthma inhaler? My friend used it during her chemotherapy during cancer treatment, she said it really helped.

hayley takes the marijuana in 3 forms.the plant bud form in the vaporizer where no smoke is realeased and childrens hospital refers to it as the nebulizer it is in effect like an asthma inhaler.but only it is fresh medicine without anything for an asesol.it is hot air blown from the machine into a ballon type thing with a mouth attachment and then u disconect the balloon and inhale as needed untill u feel better or r medicated .she also uses canna caps they are marijuana heated to release the active ingredients then they r made to a powder then put in veggie cap(thats what we use but u could use geletin.also we have our first emergency drug the tincture but we have thankfully never used it).it is hayleys strain(we r making a strain for hay and it bears ref to her)in a tincture and a few drops in the mouth preferably under the tongue but if u r seizing the mouth is fine.this will active very fast tastes terrible but will work.this is high concentration cbd and moderate thc but we r still playing with the components however this is NOT synthetic this is whole plant use. this is how we r doing it.

 cheryl and hayley

You could write a book about this! Obviously, you're working with a doctor who knows loads about medical marijuana for seizures. I noticed something in your post about a 'healthcanada' form, so maybe different rules apply there than herre.

I looked into medical marijuana here in Oregon, and I'd have to grow it myself. There's no place that 'dispenses' it in the whole state.
We'd be do-it-yourselfing it the whole way. Maybe that's why I've never heard about it here.
It's something to think about, at least.

actually we work with a scientist that is also a dr.of pathology.we are teaching childrens hospital in bc about it.i did a little reseach and i found a commasionate club in oregon that will be able to answer questions for you. http://www.compassioncenter.net/ i will look for more for you aswell.the hardest part is finding a doctor to sign.i was lucky since when our gp saw hayley he couldnt believe how healthy she was so he had no problem signing the forms.i must say though as a parent having to go first with the meds then the doctors is a horrible way for any parent to have to try a new way of helping thier child.i am hoping when we do the press release with the scientist in october that the government will have to look at this more closely. if anyone wants me to look into anything about medical marijuana in your area i would be more than glad to help point u in the right safest direction. the woman that helped start the green cross society is actually writing a book with a chapter about hayley in it. all i can say is with this med u cant hurt your child infact its the only med i have found that i can be sure i would not overdose my child if i have to give her a double dose.we started coming off the topamax and for 2 nights she had seizures but i increased the night marijuana and it stopped it. here is a peice of the conversation i had with my scientist:" Believe her seizures coming off Topamax are a resultof an increase in glutamate, a neutrotransmitter, highly implicatedin epileptic seizures. Topamax shuts off glutamate.So will THC and CBD, once the Topamax is out of the way.She might be seeing some withdrawal symptoms." this should help explain a bit what the marijuana is doing. hope this helps and if u want i will be getting medical info for doctors that i should be able to send to u soon.

i just looked a bit more on that site in oregon and if u sign up and apply for an appt at thier clinic there is a doctor on site to sign the medical forms! geez thats easier than i had to go through!!!i have contacted them and asked them to call me.even though they may not be able to give u the medication,they may know a of a legal grower that has room to grow your childs meds.that way it is someone with experience to do it,enabling you to have the most pure clean medication available. like i said i have alot of resources i am meeting and learning about daily any questions i will be more than glad to help with. cheryl

we dont get the medical marijauana from childrens but i believe there is talks of a study to be started ask dr farrell he is hayleys neuro.but first u should email me so i can give u the number to the pathologist i have that is the one that gives hayley the medical marijuana.i am staying in vancouver right now hayley has been very sick.infact she had gone into status and we went in on last monday and at that time hayleys liver enzymes were reading 787 and normal is 30 we got her outta status and they kept the canna caps and upped lamictal and kept topamax the same with the canna caps the third eeg was as good again as the one in july which was almost completely normal! but hay is still hallucinating and hearing things they r checking for autoimmune diseases right now.they also sent us home saying she was more likely to catch something staying there.they r running tests for things they dont even think it is just to rule them out.funny thing is that if we hadnt used the cannabis the symptoms we have may have been misdiagnosed.or at least not thought to be something else.im hoping they find an answer soon.email me at hours2go@hotmail.com and i can introduce u to hays doc to talk about it.

how do i post the medical report? i got the first one back now and i have 2 more coming just waiting on the paper copy.i really want everyone to know about how things r going! cheryl