In both Canada and the US, one calendar month each year is designated as National Epilepsy Awareness Month. In March, Canadians wear a lavender ribbon and fragrant flower to draw attention to a disorder that affects more than 300,000 of their fellow citizens. In the States, November is National Epilepsy Awareness Month, a tradition that began in 1970. Nearly 2.5 million Americans have epilepsy.
The goal of both campaigns is to increase public awareness about epilepsy. Many myths and misconceptions about this condition exist. Supporters conduct public education campaigns to counteract them and reduce the social stigma experienced by people who have epilepsy.
Epilepsy is often most difficult for young people between the ages of ten and eighteen. One study of teens found that they perceived epilepsy as having more negative social impact than almost any other condition. They perceived it as significantly affecting behavior, honesty, popularity, and the ability of those with the condition to participate in sports and have fun.
To address the powerful social impact of epilepsy among young people, the US Epilepsy Foundation and the Centers for Disease Control join forces to encourage respect for young people with epilepsy. Youths between the ages of ten and eighteen often face discrimination from their peers, and the “Entitled to Respect” campaign seeks to educate young people and eliminate prejudice.
Several celebrities, including Ashton Kutcher and recording artist Monica, have pitched in to help educate young people in the United States about the truth: that teenagers with epilepsy can live full, even outstanding, lives. In recent years, National Epilepsy Awareness Month has also included a contest encouraging young people to express what ‘respect’ means to them.
In addition, state and local chapters of the National Epilepsy Foundation around the country make numerous presentations to debunk myths about epilepsy and provide information about first aid for seizures.
In Canada, National Epilepsy Month also draws attention to the low level of research funding for epilepsy. Even though it’s the second most common neurological condition after chronic headaches, research funds for epilepsy are paltry compared to those for other conditions like stroke and Alzheimer’s disease.
Discuss this with the support group.
