I have a 34 year old retarded, epileptic, daughter with Turners Syndrome. Every expert in her life , teachers, doctors, etc has been 100% wrong about her. We had to fight the school system to give her a chance when they focused on her disabilities. She graduated with academic honors and made National Honor Society. All this with an IQ of 58 and taking normal education courses.
I have been her Care giver since 2001 when my wife passed away. I have been fighting and researching epilepsy treatments since that time. I cleaned up her diet and came close to the modified Atkins diet. I know it works because I have been on it for over 15 years. Her seizures reduced from 1 to 3 a week to 1 a month and all of them at night. I was happy with those results, although she was on Tegretol and Topamax, but I was uneasy because I wasn't sure of the side effects of those drugs. I wanted her off all drugs.
It all came to a head when it was discovered that Tegretol causes bone loss and she had to come off it. When she was weaned off Tegretol she did fairly well, until a couple of months being completly off the drug. She entered the ER in a status like condition. They used Atavan and after a day she was back to a foggy normal. I knew when the doctor got back from vacation she whould put her on another drug with possibly more side effects.I also knew this would happen again when the Atavan wore off.
I felt I had to give her a chance at a normal drug free life so I went with an alternate treatment that I had heard about by a doctor in Canada. He has a book called " Biofeedback For The Brain. " Once this technique is used the brain is fixed for good, he said. His name is Paul G Swingle and has a website on the internet. I called his office in Vancouver and asked if there is anyone in the states doing it and they gave me some names in my state. One lady that I called said she did not do it any longer but knew someone in Georga that had been using it for twenty years and considered him a genius, although he is not a doctor.
I called and made an appointment. The night we arrived she went into status again and they used Valium in the ER there. We still made the appointment and after just one treatment she has not had a seizure since. It's been 6 weeks now and no seizues. It was the most amazing thing I have ever seen. There is no shadow of a doubt that it worked. She has never gone 6 weeks without a seizure.
Would we have gotten the same results in Canada, even if they are using the same technique? I'm not sure. Experience counts, especially if your gifted. Things crop up that are not standard and it's what you do when things go wrong that makes the difference. I saw her EEG before and after and there was a huge difference. Her local neurologist is not happy with my decision but she will wean her off Topamax and will monitor the situation very closely. So far so good. Never give up the search and read Suzanne Somers book, "Breakout." We are still in the dark ages medically, but I'm not a doctor so take everything I say with a grain of salt.
Wayne


Neurotherapy in Canada!
Hi Wayne,
I am so thrilled to hear of your success with Neurotherapy - it confirms what I have been saying all along!
We live just outside of Vancouver, BC and was one of Dr. Swingles first patients when he moved into Vancouver. He has been doing neurotherapy for over 25 years and has the most up to date equipment and a team of professionals.
Our results were amazing as well. We had our son Adam on the ketorgenic diet which stopped his seizures, but everytime we tried to come off the diet, he would seizure. We added the neurotherapy treatment, and he was able to come off the diet and remain seizure free for over 10 years now. The neurotherapy did much more as well. It completely changed his behavior and jump started his learning which was at a standstill.
Listen to my audio podcast where I actually interview Dr. Swingle and he tells you how and why neurotherapy works. It is an amazing treatment not to be dismissed.
You can purchase his book here: Biofeedback for the brain.
Be sure to continue with treatments with your daughter. Thank you so much for sharing your story.
Warmly,
Arlene Martell (Mom of Adam above)
Publisher, EpilepsyMoms.com