Submitted by Darlene on Sat, 08/30/2008 - 08:21.
My son is 5 and has autism and epilepsy. He was put on phenobarbitol a year and a half ago and hasn't had any grand mal seizures since. But, he did had a milder one a few months ago. He didn't collapse. But, he turned grey and it lasted about 30 seconds. Even so, our neurologist wants to back him off his phenobarbitol from 3 to 2 tsp a day. He said he wants to see if he's "coming out of it". I thought that epilepsy was life long. Honestly, autism has taken up much more of my reseach and I don't hear as much about epilepsy. So, any responses would be helpful. Does this sound reasonable? I am very concerned and wondering if I am overreacting.